Using personal information to improve care when the person with dementia is not able to provide this
For extra information, evidence and best practice please scroll down to the bottom of the page.
Regional offerings
Dementia Wellbeing Plan for Greater Manchester; Dementia United
Weblink: https://dementia-united.org.uk/dementia-wellbeing-plan/
Dementia United
Weblink: https://dementia-united.org.uk/
Understanding the Law Around Dementia: a Guide for Carers and Partners of People Living with Dementia
This presentation is covering:
Mental Capacity
Advance Decisions to Refuse Treatment (ADRT)
Life Sustaining Treatment
Making a Will
Disclaimer: This document was prepared by students, is based upon the law as it stands as of 25th October 2022 and may be subject to change; it is intended as a guide to practice and does not amount to legal advice. It is not a substitute for legal advice upon the facts of any specific case. No liability is accepted for any adverse consequences of reliance upon it.
ESRC Presentations
National offerings
Alzheimer’s Society
Telephone: National Dementia Helpline: 0300 222 1122. Open 9.00am. – 5.00pm. Monday to Friday & 10.00am. – 4.00pm. Saturday and Sunday.
Weblink: https://www.alzheimers.org.uk/
Dementia UK
Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/
Evidence
Research paper - Personal information documents for people with dementia, healthcare staff’s perceptions and experiences: "Person-centred care is internationally recognised as best practice for the care of people with dementia. The study indicated the need to complete personal information documents at an early stage following diagnosis of dementia, and the importance of embedding their use across care settings, to support communication and integrated care"
The-Framework-for-Enhanced-care-in-care-homes: "Care home staff should consider using personalised support tools such as the “This is Me” document and memory boxes to enable person-centred care and avoid potential distress."
Best Practice Resources
Videos on the importance of getting to know the person and different examples: https://www.scie.org.uk/dementia/after-diagnosis/knowing-the-person/.