GPs should maintain a Palliative Care Register for those in the last 12 months of life.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Regional offerings
Community Occupational Therapy Team
Weblink: https://www.gov.uk/find-local-council
Dementia Wellbeing Plan for Greater Manchester; Dementia United
Weblink: https://dementia-united.org.uk/dementia-wellbeing-plan/
Housing for People Living With Dementia in Greater Manchester - From Policy to Practice
Weblink: https://dementia-united.org.uk/housing/
National offerings
Advance Care Planning
Weblink: https://www.england.nhs.uk/wp-content/uploads/2018/04/my-future-wishes-advance-care-planning-for-people-with-dementia.pdf
Gold Standards Framework
Weblinks:
https://www.goldstandardsframework.org.uk/
https://www.goldstandardsframework.org.uk/cd-content/uploads/files/PIG/NEW%20PIG%20-%20%20%2020.1.17%20KT%20vs17.pdf
Social Care Institute for Clinical Excellence - End of Life Care Resources
Weblinks:
Carers’ needs - End-of-life care and dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/advanced-dementia/
Advanced Dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/end-of-life-care/last-days-hours.asp
End of life care - dying at home: https://www.scie.org.uk/socialcaretv/video-player.asp?v=dyingathome
Healthwatch
Telephone: Call: 03000 683 000 between the hours of 08:30 – 17:30 Monday to Friday
Email: enquiries@healthwatch.co.uk
Weblink: https://www.healthwatch.co.uk/your-local-healthwatch/list
Eating and Drinking - information for family and friends as dementia progresses towards the end of life
This booklet may help you to make decisions, provide care, plan for future care, and it may also help to guide discussions with health professionals. You may not want to
read all of this information at this time but might wish to come back to this booklet at a later time.
PDF: Eating and Drinking - information for family and friends as dementia progresses towards the end of life - eating_and_drinking_final (1)
Evidence
Best Practice Resources
Royal College of General Practitioners: The Gold Standards Framework Proactive Identification Guidance: "QOF points specifically targeted for palliative care patients - 3 points for having a register for all patients predicted to be in the last 6- 12 months of life with any diagnosis, and 3 points for holding a multidisciplinary meeting at least 3 monthly (plus other general points included in end of life care – see later e.g. dementia)"