Carer-reported quality of life.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Regional offerings
Carers Charters and Toolkits for Greater Manchester
Weblinks:
Carers charter: https://www.gmhsc.org.uk/wp-content/uploads/2018/04/Carers-Charter-FINAL.pdf
Greater Manchester working carer toolkit: https://sccdemocracy.salford.gov.uk/documents/s16450/Item%209%20-%20Appendix%20B%20-%20GM%20Working%20Carers%20Toolkit%201%20-%204%204%2019.pdf
Dementia Wellbeing Plan for Greater Manchester; Dementia United
Weblink: https://dementia-united.org.uk/dementia-wellbeing-plan/
Dementia United
Weblink: https://dementia-united.org.uk/
Housing for People Living With Dementia in Greater Manchester - From Policy to Practice
Weblink: https://dementia-united.org.uk/housing/
LGBTQ+ Online Support Group for People With Dementia and Their Carers in Greater Manchester
Contact Maggie Hurley - to get the details to join the meeting.
Email: Maggie.Hurley@ageukoldham.org.uk
Weblink: https://dementia-united.org.uk/news/2021/07/13/new-gm-lgbtq-online-dementia-support-group/
Young Onset and Rarer Forms of Dementia
Weblink: https://dementia-united.org.uk/young-onset-and-rarer-forms/
National offerings
Age UK
Telephone: Advice line 0800 678 1602 free to call 8am - 7pm 365 days of the year
Weblink: https://www.ageuk.org.uk
Alzheimer’s Society
Telephone: National Dementia Helpline: 0300 222 1122. Open 9.00am. – 5.00pm. Monday to Friday & 10.00am. – 4.00pm. Saturday and Sunday.
Weblink: https://www.alzheimers.org.uk/
Carers Allowance
Telephone: contact The Carers Allowance Unit on: 0800 731 0297.
Weblink: https://www.gov.uk/carers-allowance
Carers UK
Telephone: 020 7378 4999
Weblink: https://www.carersuk.org/help-and-advice
Dementia Carers Count
Weblink: https://dementiacarers.org.uk/
Dementia UK
Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/
Lewy Body Society
Telephone: 01942 914000
Weblink: https://www.lewybody.org/
NICE Dementia Guidance
Weblinks:
We have provided links to the NICE guideline for dementia and a further link is provided to guidance on how to delay or prevent the onset of dementia.
National Institute for Health and Clinical Excellence (NICE) NG16 (2015) Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset: https://www.nice.org.uk/guidance/ng16
National Institute for Health and Clinical Excellence (NICE) (2019) Dementia: assessment, management and support for people living with dementia and their carers: https://www.nice.org.uk/guidance/ng97
Rare Dementia Support
Weblink: https://www.raredementiasupport.org/
Social Care Institute for Clinical Excellence - End of Life Care Resources
Weblinks:
Carers’ needs - End-of-life care and dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/advanced-dementia/
Advanced Dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/end-of-life-care/last-days-hours.asp
End of life care - dying at home: https://www.scie.org.uk/socialcaretv/video-player.asp?v=dyingathome
Together In Dementia Everyday (TIDE)
Weblink: https://www.tide.uk.net/
Young Dementia UK
Telephone: Dementia UK Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/about-dementia/young-onset-dementia/
Evidence
Carer-reported quality of life, The Adult Social Care Outcomes Framework 2018/19: This measure gives an overarching view of the quality of life of carers based on outcomes identified through research by the Personal Social Services Research Unit. This is the only current measure related to quality of life for carers available, and supports a number of the most important outcomes identified by carers themselves to which adult social care contributes
Best Practice Resources
- My own health and wellbeing (Carers support centre): Carers often neglect their own health and wellbeing as they are busy caring and thinking about the person they care for. Often carers have little free time and therefore stop doing things that they enjoy. Eating well and exercising can also fall by the way side.
- Caring for a person with dementia, A practical guide: If you are the main person supporting someone with dementia, this guide is for you. It will tell you more about their condition and how it can affect them over time.
- The Triangle of Care, Carers Included, A Guide to Best Practice for Dementia Care (England): The Triangle of Care describes a therapeutic relationship between the person with dementia (patient), staff member and carer that promotes safety, supports communication and sustains wellbeing. This guide is aimed at acute hospital wards and services where a person with dementia may be admitted but their dementia is not the reason for their admission.
- Living grief and bereavement, Tide: All the information you find in this booklet comes directly from carers. We tried to reflect different experiences in this booklet. However, we acknowledge that each carer’s journey and experience of professional support is unique.