Carers of people living with dementia have access to support and a regular review of their needs.
If you care for somebody with dementia you can contact the Memory Assessment Service to ask about what support they have available for carers in your area.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Regional offerings
Carers Charters and Toolkits for Greater Manchester
Weblinks:
Carers charter: https://www.gmhsc.org.uk/wp-content/uploads/2018/04/Carers-Charter-FINAL.pdf
Greater Manchester working carer toolkit: https://sccdemocracy.salford.gov.uk/documents/s16450/Item%209%20-%20Appendix%20B%20-%20GM%20Working%20Carers%20Toolkit%201%20-%204%204%2019.pdf
Dementia Wellbeing Plan for Greater Manchester; Dementia United
Weblink: https://dementia-united.org.uk/dementia-wellbeing-plan/
Dementia United
Weblink: https://dementia-united.org.uk/
Housing for People Living With Dementia in Greater Manchester - From Policy to Practice
Weblink: https://dementia-united.org.uk/housing/
LGBTQ+ Online Support Group for People With Dementia and Their Carers in Greater Manchester
Contact Maggie Hurley - to get the details to join the meeting.
Email: Maggie.Hurley@ageukoldham.org.uk
Weblink: https://dementia-united.org.uk/news/2021/07/13/new-gm-lgbtq-online-dementia-support-group/
Young Onset and Rarer Forms of Dementia
Weblink: https://dementia-united.org.uk/young-onset-and-rarer-forms/
Understanding the Law Around Dementia: a Guide for Carers and Partners of People Living with Dementia
This presentation is covering:
Mental Capacity
Advance Decisions to Refuse Treatment (ADRT)
Life Sustaining Treatment
Making a Will
Disclaimer: This document was prepared by students, is based upon the law as it stands as of 25th October 2022 and may be subject to change; it is intended as a guide to practice and does not amount to legal advice. It is not a substitute for legal advice upon the facts of any specific case. No liability is accepted for any adverse consequences of reliance upon it.
ESRC Presentations
National offerings
Age UK
Telephone: Advice line 0800 678 1602 free to call 8am - 7pm 365 days of the year
Weblink: https://www.ageuk.org.uk
Alzheimer’s Society
Telephone: National Dementia Helpline: 0300 222 1122. Open 9.00am. – 5.00pm. Monday to Friday & 10.00am. – 4.00pm. Saturday and Sunday.
Weblink: https://www.alzheimers.org.uk/
Carers Allowance
Telephone: contact The Carers Allowance Unit on: 0800 731 0297.
Weblink: https://www.gov.uk/carers-allowance
Carers UK
Telephone: 020 7378 4999
Weblink: https://www.carersuk.org/help-and-advice
Dementia Carers Count
Weblink: https://dementiacarers.org.uk/
Dementia UK
Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/
Lewy Body Society
Telephone: 01942 914000
Weblink: https://www.lewybody.org/
NICE Dementia Guidance
Weblinks:
We have provided links to the NICE guideline for dementia and a further link is provided to guidance on how to delay or prevent the onset of dementia.
National Institute for Health and Clinical Excellence (NICE) NG16 (2015) Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset: https://www.nice.org.uk/guidance/ng16
National Institute for Health and Clinical Excellence (NICE) (2019) Dementia: assessment, management and support for people living with dementia and their carers: https://www.nice.org.uk/guidance/ng97
Rare Dementia Support
Weblink: https://www.raredementiasupport.org/
Social Care Institute for Clinical Excellence - End of Life Care Resources
Weblinks:
Carers’ needs - End-of-life care and dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/advanced-dementia/
Advanced Dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/end-of-life-care/last-days-hours.asp
End of life care - dying at home: https://www.scie.org.uk/socialcaretv/video-player.asp?v=dyingathome
Together In Dementia Everyday (TIDE)
Weblink: https://www.tide.uk.net/
Young Dementia UK
Telephone: Dementia UK Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/about-dementia/young-onset-dementia/
Healthwatch
Telephone: Call: 03000 683 000 between the hours of 08:30 – 17:30 Monday to Friday
Email: enquiries@healthwatch.co.uk
Weblink: https://www.healthwatch.co.uk/your-local-healthwatch/list
Evidence
Dementia Action Alliance, The Carers Call to Action 2015: "Family carers of people with dementia should have assessments and support to identify their ongoing and changing needs in order to maintain their own health and well-being".
Best Practice Resources
Living grief and bereavement, Tide: All the information you find in this booklet comes directly from carers. We tried to reflect different experiences in this booklet. However, we acknowledge that each carer’s journey and experience of professional support is unique.